Resources for families and caregivers Caring for a child with Duchenne muscular dystrophy (Duchenne) means facing new information, decisions, and emotions every day. Featured tools and resources Here, you’ll find tools and trusted organizations that can help you better understand Duchenne, connect with others who share your experience, and find support along the way with KYMBEE™ therapy. Explore educational resources designed to make life with Duchenne and deflazacort therapy a little easier to manage. Caring for a child with Duchenne Download this caregiver brochure to learn more about Duchenne, deflazacort therapy, and the Promise of Support® Program available with KYMBEE. Download brochure Community and advocacy groups Connecting with others who understand the Duchenne experience can make a real difference. The independent organizations below provide education, community connections, and advocacy for people living with Duchenne. These groups can be sources of guidance, encouragement, and hope. Cure Duchenne Focuses on advancing research and providing support for families affected by DMD. Their educational tools, community initiatives, and nationwide events may help caregivers seeking information, connection, and opportunities to engage with the broader DMD community. Jett Foundation Supports individuals and families affected by DMD through education, community programs, and financial assistance. Their educational workshops, awareness events, Camp Promise, and Jett Giving Fund help families seeking practical support, information, and opportunities to stay connected. Muscular Dystrophy Association (MDA) Advances research and provides care and support for individuals affected by DMD. Their care centers, educational resources, community programs, and equipment assistance grants may be helpful for caregivers seeking medical guidance, practical support, and opportunities to connect with others. Parent Project Muscular Dystrophy (PPMD) Fights to end DMD by advancing research and advocating for optimal care. Their care resources, educational materials, community events, and personalized support options may be helpful to caregivers seeking trusted information, connection, and guidance as they navigate the DMD journey. KYMBEE and Upsher‑Smith Laboratories, LLC are not affiliated with and do not endorse any of the third-party organizations listed above. Links are provided for informational purposes only, and Upsher‑Smith is not responsible for the content of external websites. Find more ways to get the support you need Learn how the Promise of Support® Program is designed to simplify access and care for families living with Duchenne. Savings and support Getting started with KYMBEE Explore FAQs Request to stay informed IMPORTANT SAFETY INFORMATION & INDICATION for KYMBEE™ (deflazacort) Tablets Who should not take KYMBEE? Do not take if you have had hypersensitivity, including allergic reactions, to deflazacort (the active ingredient in KYMBEE) or to any of the inactive ingredients in KYMBEE. What is the most important information I should know about KYMBEE? KYMBEE can cause changes in endocrine (hormone) function. Do not stop taking KYMBEE, or change the amount being taken, without first checking with a healthcare provider, as there may be a need for gradual dose reduction to decrease the risk of adrenal insufficiency and steroid “withdrawal syndrome.” Acute adrenal insufficiency can occur if corticosteroids, including KYMBEE, are withdrawn abruptly, and can be life threatening. A steroid “withdrawal syndrome” may also occur following abrupt discontinuance of corticosteroids. For patients already taking corticosteroids during times of stress, the amount of KYMBEE prescribed may need to be increased. There is an increased risk of infection when taking KYMBEE. Tell a healthcare provider if the patient has had recent or ongoing infections or if they have recently received a vaccine. Seek medical advice immediately if the patient develops fever or other signs of infection. Some infections can potentially be severe and life threatening. Patients should avoid exposure to chickenpox or measles and alert their healthcare provider immediately if they are exposed. KYMBEE can cause an increase in blood pressure and water retention. If this occurs, dietary salt restriction and potassium therapy may be needed. There is an increased risk of developing a hole in the stomach or intestines in patients with certain gastrointestinal disorders when taking corticosteroids like KYMBEE. KYMBEE can cause behavior and mood changes that can be severe. Seek medical attention if any behavioral or mood changes develop. There is a risk of osteoporosis with prolonged use of KYMBEE, which can lead to fractures in the spine and in long bones. KYMBEE may cause cataracts or glaucoma. A healthcare provider should monitor for these conditions if therapy is continued for more than 6 weeks. Immunizations should be up-to-date according to immunization guidelines prior to starting therapy with KYMBEE. Live attenuated or live vaccines should be administered at least 4 to 6 weeks prior to starting KYMBEE. Live attenuated or live vaccines should not be used in patients taking KYMBEE. KYMBEE can cause serious skin rashes. Seek medical attention at the first sign of a rash. Rare instances of anaphylaxis, a severe allergic reaction, have occurred in patients receiving corticosteroid therapy, including KYMBEE. Before taking KYMBEE, tell a healthcare provider about all medical conditions, including if the patient: is pregnant or planning to become pregnant. KYMBEE can harm an unborn baby. is breastfeeding or planning to breastfeed. KYMBEE may appear in breastmilk and could affect a nursing child. Certain medications can cause an interaction with KYMBEE. Tell a healthcare provider about all the medicines you are taking, including over-the-counter medicines (such as insulin, aspirin or other non-steroidal anti-inflammatory drugs), dietary supplements, and herbal products. Alternate treatment, dosage adjustment, and/or special test(s) may be needed during the treatment. What are the side effects of KYMBEE? The most common side effects include: facial puffiness or Cushingoid appearance, weight increased, increased appetite, upper respiratory tract infection, cough, frequent daytime urination, unwanted hair growth, abdominal obesity, and colds. These are not all of the possible side effects. Call a healthcare provider for medical advice about side effects. This safety information is not comprehensive. Please see the full Prescribing Information for more information on KYMBEE. You can also visit www.upsher-smith.com or call 1-888-650-3789. You are encouraged to report suspected adverse reactions to the FDA by visiting www.fda.gov/medwatch or by calling 1-800-FDA-1088. What is KYMBEE? KYMBEE (deflazacort) Tablets are a prescription medicine used to treat Duchenne muscular dystrophy (DMD) in patients 5 years of age and older.